Infertility

Infertility

Wednesday, October 28, 2015

The Imposter

I started this post yesterday but since I have the results from beta #4 I'll lead with that.  It came back at 13,760 and my progesterone was 26.  My nurse who called me said the numbers looked "perfect" but I was panicked because if it continued to double it should have been higher.  But after some consulting Dr. Google I found this which provided some comfort.


"As your pregnancy develops, the hcg increase slows down significantly. Between 1,200 and 6,000 mIU/ml serum, the hCG usually takes about 72-96 hours to double, and above 6,000 mIU/ml, the hCG often takes over four or more days to double. It makes little sense to follow the hCG values above 6,000 mIU/ml as at this point the increase is normally slower and not related to how well the pregnancy is doing."

So I'm going to choose to believe my nurse that everything is progressing fine.  We scheduled an ultrasound for a week from today.  I should be 6 weeks 6 days at that point.  I'm not even going to try to go in to my feeling about walking back into the sono room.  That is for a post for another day.  Below is what I started last night......


These past few months have been filled with so many different emotions that there's no way I could tackle them all in one blog post (nor do most of you have the attention span to listen to that much rambling!).  But one of the major issues/feelings I've been struggling with lately is feeling out of place.  You see for the last couple of years my primary focus has been on our infertility.  As soon as I got my diagnosis (elevated FSH) I began researching like a crazy person.  It didn't take me long to find this amazing community and to jump head first into absorbing all of your stories and advice.  Soon there after I began my own blog and started forming some solid friendships based on these shared circumstances.  I found comfort in the fact that I wasn't facing this alone and that there were others out there that understood how I felt.  Others that had walked in my shoes and not only survived, but found a way to make their dreams come true.  In July when I found myself pregnant naturally after I got over the initial shock I thought "maybe I am one of the lucky ones".  Not that I consider 2+ years of infertility treatments and failed cycles "lucky".  But maybe this miraculous occurrence was it for us and we wouldn't have to face the stress and anxiety of another cycle (much less spend the 10's of thousands of dollars!).  When I left the devastating ultrasound where there was no heartbeat I distinctly remember thinking how stupid I was to think I could actually escape my infertility.  And although I was devastated by that loss I remember how comfortable it was to slip my cloak of infertility back on.  This is what I know, what I've become comfortable with.  I understand protocols and hormone levels and I know what our odds of success are.  So while I wasn't exactly excited to be back on the bus at least my seat was one I was familiar with.

Fast forward to two weeks ago when I got my second positive pregnancy test.  I touched on my initial post how my first reaction was one of anger.  I just could not believe this was happening AGAIN.  All the pain from the last miscarriage was still so raw.  I just sat there crying thinking I can NOT go though this again.  I won't survive it.  But of course I did.  We got the first beta and then the second and then the third.  Slowly symptoms started to appear.  My breasts got more and more sore, food became less and less appealing.  I started going to bed earlier and noticing I was increasing more tired.  Of course with each passing day and each milestone you begin to hope more and more.  

I thought several times about posting an update on my blog and one thing always stopped me.  Being infertile and getting pregnant on your own once - that's a fluke.  That happens.  We celebrate that and are here to cheer the person on and support them with our thoughts and prayers.  But getting pregnant twice in a row......  where does that leave me?  I worried that my news would be hurtful or annoying to my sisters who are still in the trenches.  I've always had this vision of once we finally had a successful transfer and made it WELL past the first trimester I would magically have the courage and strength to speak out about our situation.  I would become the advocate that I've always wanted to be for infertility.  Part of the reason that this blog is anonymous is because my husband isn't comfortable with having this very personal issue public.  But there are other reasons as well.  I'm not sure my heart can handle the response from people who aren't educated on infertility and it's treatments.  I'm not sure I can handle the well meaning advice from people who haven't walked this path.  I've also constantly struggled through every failed cycle feeling like I'm disappointing those closest to me with the failure.  Between that and carrying around their sadness I feel like I would drown.

But infertility awareness is something I've become so passionate about.  Having this community and knowing there's so many other women struggling with this has been life support for me.  And I WANT to give back.  I always thought once I had my miracle baby I would be able to do that.  If this pregnancy is viable and God willing we end up with our miracle baby does that disqualify me from the club?  I still FEEL infertile.  My test results and history prove that I am.  If I get and manage to stay pregnant naturally I"m not sure where that leaves me......
 


3 comments:

  1. Let me ask you something...do you consider Suzanne infertile? She was diagnosed with DOR in her early thirties. She tried IVF and it was an utter disaster. Complete failure. Then she got pregnant on her own in the middle of pursuing donor eggs...does that mean she's not infertile? That pregnancy ended and they continued on. Then Asherman's Syndrome and the chronic thin lining plagued her to the point that she went to the top doctor in the country. Even with the help of the very best AS doc in the country, her cycle failed. Which led her to her surrogate. Lo and behold, she got pregnant again. On her own. How could that be? This pregnancy is looking great...30 weeks with no real scary news. Does the presence of Liddy erase the last four years? Is Suzanne kicked out of the "club"? I know you'll answer no. I'm just trying to prove that you belong. Just as much as Suzanne and all the rest of the unbelievable stories of success. A miracle doesn't remove your diagnosis or your right to belong within this community. It just saves your pocket book. : )

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    1. Very valid points. And as someone still in the trenches I cried tears of joy and was so beyond happy for her when she announced her pregnancy. In the end I think it doesn't matter HOW we get from point A to B right? And even if I don't grow my family through IVF or IUI or donor eggs or adoption doesn't make the struggles we've been through less valid or mean that I'm not "allowed" to be an advocate right?

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  2. My RE described that we were 'subfertile' (before we started treatments) meaning that spontaneous conception was biologically possible, but did we want to wait each month, let time pass and then when we decide to do IVF discover that our chances for success have dropped? One not even two spontaneous conceptions erases the prior diagnoses, failed cycles or time lost

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