I just couldn't resist using the quotes in the title since I'm obviously not "due" with anything. Just trying to keep the humor in this situation because obviously what else can you do?
So I'm sorry I've been MIA. Life has been CRAZY and not exactly great lately. The last month or so has been pretty rough as D (my husband) is really struggling. He's been so awesome throughout this entire process. So supportive and positive and definitely the rock in our relationship. However after this last failure (3 fresh cycles, and 5 transfers) it seems it's just all really hit him hard. When we started our 3rd fresh cycle coming off an early miscarriage and a failed FET we knew that if it didn't work CCRM was our backup plan. I think it helped both of us knowing what our next step would be. However it's clear now that he never believed it would come to that. And now that it has he's really struggling with a lot of the feelings and emotions that I had much earlier on. I know he's depressed and pretty bitter and angry about the situation. All of which is perfectly normal. But it's been SO difficult to watch him struggle. It's truly one of the hardest parts of this whole mess - is seeing him hurting. But after all he's done for me and gotten me through I know it's my turn to do the same for him. It's my turn to be the positive person and carry us through this.
All that being said we are making progress with CCRM. We went out for our One Day Work Up and survived. It was INTENSE - just like everyone warned me it would be. And sadly Dr. Schoolcraft was out of the office that day so we didn't get to meet him in person. We did have a brief one-on-one with Dr. Surrey who I LOVED. It was obvious that he took the time to read our file and he answered the few questions we did have and was very optimistic about our case. He performed my hysteroscopy and while I technically won't get any of the results from all of our tests that day until my phone follow up with Dr. Schoolcraft, he did tell me that everything looked "normal". So that was reassuring. I also passed my Doppler ultrasound with flying colors and my AFC (antral follicle count) was 16! Guys that's almost normal (WTH???). So that was all pretty promising. The one issue we did discover was during my HSG. I've never had that test done before and turns out one of my tubes is "partially" blocked. The dye didn't flow through during the procedure but once I stood up and moved around and they did the final x-ray we could see that it did flow through. I'm not really sure what that means for us moving forward. The nurse was able to tell me that the one thing they are looking for in the HSG (related to IVF) is when the fluid flows BACK into the uterus. This did not happen so I'm not sure if they will even want to do anything about that tube or just leave it be. That's information we'll get at the follow up call. D also gave a sperm sample that day and we got tons of blood work drawn. And attended CCRM orientation and signed a billion forms. That was pretty much the day! So all in all not terrible and one more thing off our list.
I had some to-do's to take home with me and get done. I needed an updated pap, a full physical, lab work to test for immunizations, my TSH, and some other levels (Vitamin D??). In addition Dr. Schoolcraft also wanted me to do the beta 3 integrity test. I had to test with ovulation sticks for my LH surge (which surprisingly hit right on schedule on Day 14 of my cycle). Then the test needs to be done 9-11 days later. Today was day 10 and I had the biopsy this morning. It was NOT pleasant but it's done and I took my piece of tissue and shipped it off via second day Fed Ex. (I text my best friend and told her I was just cruising to Fed Ex with tissue from my uterus riding shotgun.....this is my life). So that's one more big to-do crossed off the list. The last thing remaining is my Day 3 blood draw. So once I start my period I'll get that drawn and they will spin it and I have a special kit to ship it to CCRM who will run the tests in their lab. We've tentatively scheduled our phone follow up with Dr. Schoolcraft for May 6th since I should start my period this weekend and that would allow me to get the blood drawn and shipped out there. I'm super nervous/anxious for that meeting. If they don't want to do any further tests I should get my protocol recommendation from him that day and potentially my calendar! If he decides he wants to do surgery on that tube or anything else there will obviously be more delays. I am just really hoping we can do at least the retrieval this summer as D is off (he's a teacher) so would be free to come to Colorado with me for the entire 7-10 days.
So.....that's where we are! Overall I've been impressed with CCRM and I'm feeling hopeful. Obviously I'm scared that we won't get a lot of eggs and none of the embryos will make it day 5, which they need to in order to do the CCS testing. Then if we do have some that make it we won't have any that are normal. But I remind myself that CCRM has the best lab in the country which gives our embryos the best chance. And I *think* we are capable of producing genetically normal embryos since the crappy Day 3 testing we did proved that (even through it probably fatally damaged the embryos in the process). I guess the hardest part is knowing this is the end of the road for us. Before when we were cycling locally we always had CCRM in our back pocket. Now that we are here where does that leave us if this doesn't work?? Those are the fears that keep me up at night.
And while this past month or so has been rough we've also had some good times. We attended Opening Day for the Cubs at Wrigley Field with FREE tickets from my work and had a great time. We also celebrated another anniversary and felt much love and support from family and friends on that milestone. And while it's been really tough to watch D struggle I know when this is all over we'll be stronger because of it. We've already gotten through so much and while it hasn't been easy we are still fighting this battle together and on the same page. In the anniversary card that he got me he wrote "All I need to know is that we'll be together forever". And that, my friends, is what it's all about.
I appreciate your experience. I'm not too far off going CCRM myself.
ReplyDeleteGlad your experience so far with CCRM has been good. I really think their lab made all the difference in the world for us - we had never had any embryos go beyond day 3 before going to them, and we had 7 actually make it to day 5 and CCS testing with CCRM. So I am hopeful that their lab will give you guys some of the answers you are looking for!
ReplyDeleteBoo! I'm sorry D is struggling! I've honestly never seen Sam really struggle with this crap, which I worried about, but I'm also kind of thankful for. It would be so out of character that I'm not sure if I'd know what to do.
ReplyDeleteHoping everything continues to progress and that the blood work goes better this time around.
So glad to hear from you and so impressed with your report from CCRM! It sounds like things went as well as can be expected, and your prognosis looks good! If there is question of possible fluid in the tube, the may recommend ligating it, or placing an Essure coil, but it shouldn't delay things too long. Implantation rates were improved with patients who were found to have any fluid in the tubes, thus creating the ultimate irony that such patients become more fertile once their have a sterilization procedure. I really feel that CCRM is going to work their magic for you!
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